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When Safety Is Not Enough: The Hidden Cost of Aging Out with a One on One
After 22 years of living with Dravet Syndrome, you develop a sense of normalcy. Seizures happen. You manage them. You move on with your day. You build a team to manage your warriors day like neurologists, therapists, nurses, educators, family (or whoever is still standing beside you). Life becomes structured around medical protocols, emergency plans,…
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Misinformation or Manipulation
There’s been a lot of misinformation and wild claims floating around, particularly concerning my daughter Natascha. Some of this has been in the form of podcasts, articles, and even rumors that have no basis in fact. As a parent, it’s time I set the record straight, not only for Natascha but also for anyone who’s…
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The Poppy
I have two two daughters that I am exstremly proud of Natascha and Abigaile. They could not be more oppisite of each other. Natascha is the elder and lives in Orlando with her boyfriend Carl (as of this writting). She recentlly received her second Associate degree as an audio engineer. She is working towards a…
Allen Golec 